Blog Home Page (News)

Home/Blog Home Page (News)
Blog Home Page (News)2021-04-19T13:28:07-04:00

The NFXF Blog

SUBSCRIBE

International Fragile X Conference Updates

By |Mar 29, 2012|

Curious about what's going to be at the conference? Here are a few highlights: Keynote presentations by Elizabeth Berry-Kravis MD PhD, Kim Huber PhD, , Stephen Warren PhD, and Rick Guidotti of Positive Exposure [...]

How To Choose an App

By |Mar 29, 2012|

Sarah "Mouse" Scharfenaker There are millions of great apps out there. Here are some guidelines as to how to pick 'em. What is your goal in using a specific app? Reinforcing/practicing concepts from therapies? Keep [...]

A Forward Trajectory

By |Mar 29, 2012|

From the Executive Director Robert Miller Advocacy Day is over – but our Public Policy effort continues: Twenty-three of the twenty-five Fragile X clinics have met – but the work of the Fragile X Clinical [...]

On the Murder of George Hodgins

By |Mar 19, 2012|

Robert Miller Executive Director National Fragile X Foundation Dear Friends in the Fragile X Community, On March 6th, 2011 George Hodgins, a 22-year old autistic man living in Sunnyvale, California, was murdered by [...]

Public Policy Is for People!

By |Feb 23, 2012|

"Public Policy Is for People!" reflects a fundamental truth about the legislative advocacy efforts we pursue at the National Fragile X Foundation. Yes, "public policy" may sound like a forgettable chapter in your high school [...]

Does Your Child Need Help to Improve His/Her Math Skills?

By |Feb 14, 2012|

Stanford University Standford University Research Individuals with Fragile X Syndrome Age 9-23 Years Needed We are conducting a behavioral treatment study utilizing a fun, reward-based learning paradigm to maximize your child’s learning potential. Participation [...]

A Mom's Introduction to Advocacy Day

By |Feb 7, 2012|

The following is a personal blog post written by Melissa Welin, Co-Founder of the Fragile X LINKS Group of Eastern Massachusetts giving an introduction to Advocacy Day through the eyes of a first time advocate. [...]