The NFXF Blog
Focus on Fundraisers: December
2011 Annual Fund Since 1984, the NFXF has made it a goal to always be looking forward. Whether we are providing support and information for a newly diagnosed family, advocating each year for federal funding [...]
Help us reach our goal!
Thanks to our generous and loyal supporters, we are currently ahead of schedule to reach our goal for the 2011 Annual Fund! If you have not yet donated, you can help us reach 2012 [...]
Introducing the Keeping All Students Safe Act
Senator Tom Harkin (D-IA), Chairman of the Senate Health, Education, Labor and Pensions Committee, introduced the Keeping All Students Safe Act, a bill to protect students from ineffective and dangerous seclusion and restraint practices in [...]
Welcome Sharon Kidd to our team
We'd like to welcome Sharon Kidd, PhD to our team at the NFXF. Sharon joined us a few weeks ago and will serve as the National Coordinator of the Fragile X Clinical & Research Consortium's [...]
Transitioning Forward (Part 1 of 2)
In Part One of our two-part series, we interview two different parents whose children are moving forward in their lives. Melissa Street's son Jesse is transitioning into a typical classroom, and Carolyn Jackson's two daughters [...]
Study recruitment: Parent Mediated Language Intervention for Young Children with FXS
Young children with Fragile X syndrome and their biological mothers are being recruited to participate in a language intervention study conducted by the research team of Dr. Leonard Abbeduto at the MIND Institute, University of California-Davis. Children should be between 2- and 6-years of age and have little spoken language. The project will teach mothers to interact with their children in ways that support communication and language development.
Life: A Series of Transitions
I realized when my son Ian was just 4 years old that he had difficulty with transitions. I had never thought about transitions being difficult. You just did them - you didn’t think about it. Well, with Ian, I started thinking about them. I still do to this day. I quickly learned I had to allow plenty of time for everything, arrive early to events, set up schedules and routines, take time for transitioning back home—and that was just the beginning.
Research finds Speed Limit of Visual Perception in Infants with FXS
Abstract Fragile X syndrome is the most common cause of inherited intellectual impairment and the most common single-gene cause of autism. Individuals with Fragile X syndrome present with a neurobehavioural phenotype that includes selective deficits [...]
A Thanksgiving message from Robert Miller
Thanksgiving, of course, always reminds me how much I have to be thankful for: family, friends, colleagues, and the incredibly dedicated community of Fragile X professionals. This year, I especially want to single out all [...]
Best Cousins Make Best Buddies
By Gail Heyman It was an exciting weekend in Washington, DC when Scott Heyman joined his cousin, Allison Gordon, for the 2011 Audi Best Buddies Challenge. They participated in the 100K bike ride, [...]
Washington Update – ABLE Act & Budgets
Despite the fact that we're now 7 weeks into fiscal year 2012 the budget for 2012 that impacts FX research and programming (CDC, NIH, DOD) remains unfinished. There was a slim chance that it would [...]
2011 Annual Fund
Twenty-five-year-old David Inz works three jobs, has mastered public transportation and shares a residence in one of the several large apartment buildings that are home to the 35 young adults in his program. “The [...]