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The NFXF Blog

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How have we helped you?

By |Oct 14, 2014|

How has the NFXF helped you and your family over the years? As we close out our 30th year of service to families, we'd like to share pictures and statements of how we've helped you [...]

GA: Family Bowling & Social

By |Oct 7, 2014|

Fragile X Fun Day, A Family Celebration Date: November 2, 2014 Time: 02:00 PM Location: The Brunswick Zone2749 Delk Road Southeast Marietta, GA 30067 Directions: Take I-75 to Delk Rd. (exit 261) Turn right if [...]

GA: Family Bowling & Social

By |Oct 7, 2014|

Fragile X Fun Day, A Family Celebration Date: November 2, 2014 Time: 02:00 PM Location: The Brunswick Zone2749 Delk Road Southeast Marietta, GA 30067 Directions: Take I-75 to Delk Rd. (exit 261) Turn right if [...]

Alcobra Clinical Trials in 12 Cities

By |Oct 2, 2014|

Alcobra, Ltd. Alcobra is pleased to let you know about a new clinical trial that is currently underway and recruiting patients with Fragile X syndrome. The study is seeking male and female participants between [...]

The Long Winding Road to Eureka

By |Oct 1, 2014|

Reposted from NFXF Quarterly, President’s Note, Issue #44, March 2012 How did I wind up here? Eight short years ago I had never heard of Fragile X, let alone CGG repeats, carriers, and mGluR theory. [...]

Seattle Children's Hospital Metadoxine trials

By |Sep 30, 2014|

Seattle Children's Hospital Does someone you love have Fragile X syndrome (FXS)? If so, please know that we are currently enrolling individuals with FXS between 15 and 55 years of age to participate in a [...]

NIH awards $35 Million for Fragile X Research

By |Sep 23, 2014|

Three research teams receive funding over next five years The National Institutes of Health (NIH) is making funding awards of $35 million over the next five years to support the Centers for Collaborative Research in [...]

Forward, Together

By |Sep 15, 2014|

It is my honor and privilege to join the Fragile X community as the new CEO of the National Fragile X Foundation. Since my arrival, I have had the opportunity to witness, first-hand, what I [...]