The NFXF Blog
MN: Beaver Island Brewing Event
Get excited for the Fragile X of Minnesota's 2nd Annual Fundraiser at Beaver Island Brewing Company! Good beer, good times and a good cause!
FXS Autism and Behavior with Mouse and Tracy — Valentineʼs Day Edition — Webinar
Love is in the air! Our very good friends from Developmental FX join us to answer questions about Fragile X and behavior.
Passion for Community and Support Key to Success for Annual Conference
When Tammy and Andy Selinger received their daughter’s diagnosis in 1994, even their doctor was unsure what it meant. He just told them the test was positive for Fragile X. One of their first calls was to the National Fragile X Foundation, where they were connected to a long-time volunteer, Margaret Israel, who spent more than an hour and half on the phone with them. The support they found during such a critical time motivated them to get involved because as Andy says, “Nobody should get diagnosed without someone to talk to.”
Greater Atlanta Hosts Incredibly Successful Brew Fest
With the support of their community, NFXF board members and outstanding CSN leadership, Greater Atlanta Fragile X hosted an amazingly successful Brew Fest event for the second year in a row.
Local Tournament Raises over $1,100 for NFXF
What happens when you combine friendly competition and a campaign to raise awareness of Fragile X? Tremendous success! Western Massachusetts participated in the 2nd annual Hadley Cornhole Championship, raising awareness and over $1,100 for NFXF!
CT: 10th Annual Conference
Fragile X Society of Connecticut 10th Annual Conference Date: October 21, 2017 Time: Location: University of Connecticut Health Center 263 Farmington Avenue Farmington, CT 06030 Hosts: Fragile X Society of Connecticut Details Save [...]
Critical Incident Management for Mothers of Children with Fragile X Syndrome
Dealing with critical incidents is very important for caregivers of individuals with Fragile X syndrome (FXS), particularly biological mothers. Unfortunately, critical incidents occur frequently for many caregivers of children with FXS. Behavioral outbursts and aggression are critical incidents that take place in the home or in the community. For biological mothers of children with FXS who carry the premutation gene, there is the added predisposition to anxiety, as well as other emotional concerns (Coleman & Riley, 2014), which can amplify their response to these critical incidents.
Moms' Night out with Connecticut and Western MA
It's always fun with moms get together and share stories and good times!
Change of Command Celebration for Missouri
After eight years of dedicated service, Diane Southard stepped down at president. We gathered as a group to celebrate her accomplishments and formally welcome Sara Hamilton into the role!
Moms' Night Out with Southeastern Pennsylvania
[mpc_image preset="preset_2" image="26932" margin_divider="true" margin_css="margin-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100" mpc_ribbon__disable="true" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="1200" animation_in_delay="600"]In mid-January, our Southeastern Pennsylvania group hosted a moms' night out, and it was a tremendous success! They enjoyed good food [...]
The 'Asks' for NFXFAD2017
In preparation for the National Fragile X Foundation's Advocacy Day 2017, we are publishing initial details on our "asks" for this year's meetings. It is our goal to provide each advocate ample time to prepare, in an effort to ease anxiety related to the day. Our asks, as always, are bipartisan and reflect the best interests of our community. Personal politics have no place in Advocacy Day so we hope each of you will come to Washington, DC prepared to share your story and fight for the needs of all those living with Fragile X.
IA: Bike for Fragile X
Get ready for the 2nd annual Bike to X Out Fragile X event! Voted our most innovative event of 2016, this 56 mile ride includes food, fun, beer and raffle items!