The NFXF Blog
Faces of Fragile X: Colin
Meet Colin. He has Fragile X syndrome. He knows everyone and has earned the nickname 'The Mayor.' His mom wants newly diagnosed parents to know, don’t ever give up. It’s ok and it’s not your fault. Advocate, educate and persevere.
Rep. Engel Raises Fragile X Awareness in Congress
Rep. Eliot Engel, D-NY-16, serves as the co-chair of the Fragile X Caucus in the U.S. House of Representatives. His co-chair is Rep. Chris Smith, R-NJ-4. To help raise awareness of Fragile X for National Fragile X Awareness Day, Rep. Engel had a statement. Read the full statement here.
Faces of Fragile X: Cody
What would you like others to know about him? I want people to know that Cody is my reason. My reason why I do the things I do for the Fragile X community. My [...]
South Carolina Fragile Awareness X Day 2019
Governor Hency McMaster proclaims July 22, 2019 as Fragile X Awareness Day in South Carolina. Read his entire proclamation.
Faces of Fragile X: Ian
Ian has Fragile X syndrome. Meet Ian and see what his mom says about him, what she wants her community to know about Fragile X, and her advice for new parents.
Pack Your Lunch for Fragile X
July 22 is National Fragile X Awareness Day. Wear green, pack your lunch, and donate your lunch money to the National Fragile X Foundation. And urge your coworkers do to the same!
Faces of Fragile X: John Menke
John Menke has FXTAS. Read what his daughter, Kelly, has to say about him, FXTAS, research, advice to new parents, and more.
Faces of Fragile X: Jack
Jack is a very happy 7-year-old boy. He is healthy, loves to swim, loves animals, and, while is he delayed, he continues to gain skill and learn new things every day.
Behold: The Fragile X Syndrome Burger
Momma Cherri heard about Jordan’s bell ringing and Fragile X Awareness Month, so she created a Fragile X burger and filmed an episode to educate her viewers about Fragile X syndrome and teach them how to make a Fragile X burger.
Face of Fragile X: Logan
What would you like others to know about him? Logan is 10 years old and was diagnosed at 15 months old. It hasn’t been an easy road but with help from family, friends, and his teachers he has progressed and learned so much.
Faces of Fragile X: David
Meet our friend David. David likes the show Law and Order because they fight the bad guys. He had a lot of fun at last year’s Conference.
Faces of Fragile X: Patrick
What would you like others to know about him? Pat is funny and likes to laugh. He does not speak but is funny in his own way. As an example, if you ask, "How [...]