Jack is a very happy 7-year-old boy. He is healthy, loves to swim, loves animals, and, while is he delayed, he continues to gain skill and learn new things every day.
What is your favorite thing about him?
He is the happiest person I know and has an amazing memory.
If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be?
That our kids are happy, funny, and have amazing memories. Teachers love our kids because they are so loving and love people and learning.
What is your advice for newly diagnosed families?
That our kids are healthy. We don’t spend much time in the hospitals. Fragile X kids need behavior management and learn a special way but they are healthy and happy kiddos!
What do you want your community to know about Fragile X?
That Fragile X may look like autism but that it’s different because our kids are socially motivated and love people.
What advice do you have for parents/caregivers who are considering participating in research studies and/or clinical trials?
It’s a great idea. Our kids have access to clinical trails and medications that can be really beneficial for language development.
About Faces of Fragile X
We asked parents, caregivers, and others to answer a few questions about their loved ones with Fragile X. These are the Faces of Fragile X, and This is Fragile X. If you would like to learn more about Fragile X, start here.