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Blog Home Page (News)2021-04-19T13:28:07-04:00

The NFXF Blog

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NFXF Belonging Project

By |Dec 20, 2024|

The Belonging Project, one of our newest initiatives, aims to intentionally extend our reach to underserved and underrepresented communities across the United States. Hear from each of the three Fragile X clinics and our own in-house belonging survey, on how we’ve begun work to understand the challenges to diagnosis, treatment, and feeling a sense of community belonging faced by Black, Hispanic, and Native American groups and the providers who serve them.

Enjoying Your Winter Holiday Season

By |Dec 6, 2024|

Each person with Fragile X syndrome is different, so what works for one may not work for the other. We want you to enjoy the season, so we’ve gathered a list of activities, tips, and advice to set you up for success.