By Missy Zolecki
After three years of hosting events online, the NFXF Western Massachusetts and Connecticut Chapter organized a casual evening out. The group consisted of moms, siblings and self-advocates. Tammy Selinger, NFXF Connecticut Chapter Leader, said, “it was exciting to be back in-person and the evening was wonderful! The evening was filled with conversation and new connections were made!”
The Western MA and CT chapters plan to organize additional in-person gatherings later this year!
Thank you Denise, Tammy, and all of those who attended for an evening filled with laughter and connection!
about
Missy Zolecki
Missy joined NFXF team in 2018 after being an active volunteer since 2010. Missy organized several fundraisers and educational workshops while serving in her volunteer role. Missy is the mother of three children. Her eldest son, Matt, lives with Fragile X syndrome. Prior to joining the NFXF team, Missy had worked as a nurse for more than 20 years. She enjoys traveling and spending time with family and friends.
learn more
Community Event Highlights – NFXF Greater Chicago Chapter
NFXF Greater Chicago chapter hosted and organized local events to bring together the Fragile X community.
Cost of Delayed Diagnosis in Rare Disease: A Health Economic Study
The National Fragile X Foundation is proud to be part of the Everylife Foundation’s newest report, The Cost of Delayed Diagnosis in Rare Disease: A Health Economic Study.