Behavioral Issues in FXS+ASD

By |2023-02-22T11:26:51-05:00Apr 11, 2019|Behavior|

Thanks to FORWARD — the Fragile X Online Registry With Accessible Research Database — plus standardized clinician- and parent-reported data from 25 Fragile X clinics, we now have access to samples large enough to include a breakdown of findings by age groups.

Concept and Use of a Sensory Diet

By |2023-06-14T16:17:37-04:00Sep 21, 2018|Behavior|

Leading pediatric occupational therapists, Tracy Stackhouse and Sarah Scharfenaker, provide an overview of the concept and use of sensory diet including a downloadable sensory diet template, and an example of a completed template for a sample patient.

10 Rules of Time-Out

By |2023-06-14T16:16:05-04:00Sep 14, 2017|Behavior, Treatment and Intervention|

I have found these 10 time-out “rules” to be the keys to success. They are based on the fundamental principles and incorporate adaptations for children with Fragile X syndrome by accommodating repetition, consistency, and predictability.

Visiting the Dentist

By |2023-06-14T16:19:05-04:00May 10, 2017|Behavior|

I learned pretty quickly that visits to a dentist were going to be a challenge for my son, Ian. I demonstrated the process over and over again. I helped him brush his teeth, encouraged him to brush his own teeth, tried different toothbrushes and toothpaste. I needed Bonnie.

Visual Wizardry: Using Visual Supports to Change your Child’s Life

By |2023-06-14T16:19:23-04:00Aug 31, 2016|Behavior, FXS, Support and Resources|

Visual supports help translate the environment and expectations to an individual with FXS without requiring direct processing of language. This type of information can be processed quickly. Visual supports remain present, so they can be referred to more than one time, whereas verbal directions might be heard and then forgotten. Learning to use visual supports can help alleviate anxiety for the person with FXS and frustration for the person providing support.

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