Little Rhody Warriors families held their second annual “Fragile X Awareness Walk” on May 18 in Warwick, Rhode Island. More than 50 family members, caregivers, and friends participated in this X Strides event.
Rhode Island families gathered for a night out at a local restaurant on April 12th to share experiences and stories.
We’re on a mission to enroll 600 participants with FXS born in 2003 through 2020. We’re halfway there and need your superhero help to hit our target!
Following recent updates on Shionogi’s EXPERIENCE clinical trials, a video message from Juan Carlos Gomez of Shionogi & Co., Ltd.
The NFXF has released a new 90-second video to help educate and spread awareness of Fragile X. Perfect for sharing!
The Haugen’s third Fragile X Christmas Party was another smashing success. Their fundraising goal was $25,000, and they raised a whopping $36,420.
Executive Director Hilary Rosselot welcomes the incoming class of 2025 Board Members. We look forward to working together to serve the entire Fragile X community.
Dr. Hagerman told a short story about how the National Fragile X Foundation came to be at this year’s NFXF International Fragile X Conference, and we want to share her story with you.
The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, was another great success in 2024! Check out the big fish and the big smiles.
Learn how we are equipping families with resources needed to plan for the future with confidence, while we continue to work towards treatments for Fragile X.
Learn how we are expanding our network of Fragile X clinics to better support individuals living with the Fragile X premutation.
When we take a moment to reflect on what means the most to us in this season of gratitude and joy, the Fragile X community tops the list.
Our NFXF Belonging Grant is already making an impact. Learn how we're expanding this program to reach even more families impacted by Fragile X!
We're on a mission to find and support EVERY family living with Fragile X
Highlighting the Fragile X Clinic at the Michigan Medicine Fragile X clinic , a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)
