Fishing for a Cure: The Christoffs Have Done it Again!
The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, was another great success in 2024! Check out the big fish and the big smiles.
Hope for the Future – Adult Resources
Learn how we are equipping families with resources needed to plan for the future with confidence, while we continue to work towards treatments for Fragile X.
Hope for the Future – Expanding Clinical Care
Learn how we are expanding our network of Fragile X clinics to better support individuals living with the Fragile X premutation.
Messages of Gratitude — Video
When we take a moment to reflect on what means the most to us in this season of gratitude and joy, the Fragile X community tops the list.
Hope for the Future – NFXF Belonging Grant
Our NFXF Belonging Grant is already making an impact. Learn how we're expanding this program to reach even more families impacted by Fragile X!
Hope for the Future – Find Our People — Video Slideshow
We're on a mission to find and support EVERY family living with Fragile X
The Michigan Medical Fragile X Clinic
Highlighting the Fragile X Clinic at the Michigan Medicine Fragile X clinic , a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)
NFXF Western Massachusetts Chapter Hosts Cork and Cafe 2024
More than 50 friends and supporters gathered on September 29 to eat great food, taste various wines, bid for prizes, and raise awareness and funds to support the Fragile X community.
The People Who Are The NFXF
So many people - volunteers, team members, donors, advocates, including self-advocates, clinicians and clinic teams, researchers, therapists, educators, counselors, advisors and others - over the past 40 years have helped make the National Fragile X Foundation what it is today!
A Reflection on the CEO Commission’s 2024 Hill Day
NFXF Executive Director, Hilary Rosselot, and Advocacy Ambassador, Dillon Kelley, attended the CEO Commission for Disability Employment’s Employment Summit and Hill Day in September 2024. It was an inspiring, action-packed few days, and they are excited to share more about their experience and why it matters to the Fragile X community.
Families for Fragile X Host Successful “Fragile X Walk”
Families for Fragile X held their first “Fragile X Walk” event on July 20 in Warwick, Rhode Island. More than 50 family members, caregivers, and the general public participated their first X Strides event.
Harmony Biosciences & RECONNECT Team Join FXS Community in Advocacy
Over the past six months, the Harmony team has worked alongside their colleagues at Zynerba and the RECONNECT trial to create and deepen existing ties with members of the Fragile X syndrome (FXS) community.
Cincinnati Fragile X Research and Treatment Center
Learn more about the Cincinnati Fragile X Research and Treatment Center, and meet their team of pediatricians, psychiatrists, and psychologists.
Fragile X Program at Thompson Autism and Neurodevelopmental Center, Children’s Hospital of Orange County
Learn more about the CHOC Fragile X Program, what to expect when you visit, and meet Drs. Sailaja Golla and J. Thomas Megerian.
Making Waves for Fragile X: The 7th Annual Fishing for a Cure Fundraiser
The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, was another great success in 2023! Check out the big fish and the big smiles.