Mitch Christoff holding a sign that reads Thank you for supporting Fragile X.

Since 2018, Jay Souder and his wife Anne, have hosted an annual golf event they call “FORE! Fragile X” in honor of their son, Alec, who has Fragile X syndrome.

The golf event has grown from a locals-only golf tournament to a national reunion of sorts, with friends and extended family from around the country coming to Orange Tree Golf Course Scottsdale, AZ to tee-off for a round of 18 holes, followed by lunch, a raffle, and plenty of fun.

This year alone, the FORE! Fragile X golf event has raised $51,072.51 from their attendees, donors and sponsors. Since 2018, the Souders have raised nearly $220,000 for the National Fragile X Foundation…simply incredible!!

Four golfers jumping and raising their arms

The NFXF has always been there for us, and we want to do everything we can to make sure that other families will benefit from their work as much as we have.


Anne and Jay Souder have been active supporters of the National Fragile X Foundation since the mid-1990s after their son Alec was diagnosed at the age of five. They know that the landscape of managing life with Fragile X is constantly changing and presents a unique set of challenges for parents and caregivers. Jay and Anne’s drive to organize a charity fundraiser comes from the desire to give hope to all families and to raise awareness and funds for the National Fragile X Foundation.

The National Fragile X Foundation promotes advocacy, provides education, advances research, improves treatment, and champions the estimated 1.5 million Americans with the Fragile X gene premutation and up to 100,000 Americans with the full mutation, Fragile X syndrome.

Thank you to Jay, Anne and Alec – and to all of your golf guests, donors and sponsors over the years – for making an incredible impact on the lives of those impacted by Fragile X!

Six men riding beach bikes in Hilton Head, SC..
four boys lining up their shot on the putting green
Woman pointing to Hole Sponsor sign

A look at some photos from last year’s FORE! Fragile X Golf Event!

Jay Souder served as a National Fragile X Foundation volunteer board member for seven years, as NFXF Board President for two years, and currently serves as Board Ambassador. 

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  • Mitch Chrisoff holding a sign that reads Thank you for supporting Fragile X.

6th Annual Fishing for a Cure

The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, is an example of inspiring and creative ways to raise money for Fragile X. Thank you Joey and Mitch!

  • A National Fragile X Foundation family of a dad, mom, and son who has Fragile X Syndrome.

Together We Give

Help us help them by supporting our mission to serve all those living with Fragile X. Advocacy, education, research, and treatment with the community are at the heart of everything we do.