A Discussion With Our Esteemed Panel of Research and Clinical Professionals
By Missy Zolecki
We receive inquiries and questions daily about the Fragile X premutation. We are excited to share this dynamic panel discussion that includes both research and clinical professionals from the 18th NFXF International Fragile X Conference. This session took place after Dr. Randi Hagerman presented her Premutation Concerns presentation.
Each of the panelists answer questions from their experiential perspectives on topics related to the Fragile X premutation, including FXTAS, FXPOI, and other emerging areas of concern.
We encourage you to grab a pen and paper to take notes as you listen to the organic and passionate discussions in this collaborative panel.
Presenters: Drs. David Hessl, Emily Allen, Deborah Hall, and Randi Hagerman
Moderator: Hilary Rosselot
Runtime: 1:19:04
Interested in participating in research opportunities that were mentioned during the panel discussion?
Learn more about the International Fragile X Premutation Registry
about
Missy Zolecki
Missy joined NFXF team in 2018 after being an active volunteer since 2010. Missy organized several fundraisers and educational workshops while serving in her volunteer role. Missy is the mother of three children. Her eldest son, Matt, lives with Fragile X syndrome. Prior to joining the NFXF team, Missy had worked as a nurse for more than 20 years. She enjoys traveling and spending time with family and friends.
about
Hilary Rosselot
Hilary joined the NFXF team in 2019. Prior to joining the NFXF team, she worked at the Cincinnati Fragile X Research and Treatment Center for over five years. She has experience as a clinical research coordinator across many types of clinical trials and served as the clinical research manager for the Cincinnati program. She earned a bachelor’s degree in psychology, a master’s, and is a SOCRA certified clinical research professional (CCRP). She enjoys time with family and friends, a great book, a strong cup of coffee and, of course, a good laugh!