Fragile X Info Series
Browse our available information flyers designed to be easily printable on home and office printers. We created these so you can distribute them as needed, whether it’s for a neighbor, students at school, your own reference, or you work at a clinic and want to share information with new families. Whatever the cause, they are meant to be informative and shareable.
We are continuously adding new Info Series flyers, including rolling out Spanish translations. (Estamos continuamente agregando nuevos folletos de la Serie de Información, incluyendo el lanzamiento de traducciones al español.)
Check back often, or subscribe to our email newsletters to be alerted to all our new content as it becomes available.
Fact Sheets
Fragile X Syndrome
- Fragile X Syndrome: An Overview for Families and Providers
- Fragile X Syndrome: Talking With Kids of All Ages
Fragile X Syndrome — Adulthood
Fragile X Syndrome — Physical and Medical Concerns
Fragile X Syndrome — Newly Diagnosed
Fragile X Syndrome — Females
Fragile X Syndrome — Daily Living
Fragile X Premuation
School and Education
Fragile X Fact Sheets
In addition to the Info Series documents below, we have a one-page and two-page fact sheet on Fragile X.
What is Fragile X?
In a two-page format, this fact sheet defines the Fragile X group of disorders — Fragile X syndrome, Fragile X-associated tremor/ataxia syndrome, and Fragile X-associated primary ovarian insufficiency. It also includes a list of Fragile X facts, contact information for the NFXF, and answers the questions of how Fragile X is inherited and what are the treatments for Fragile X.
Fragile X Fact Sheet
In a one-page format, this fact sheet defines the Fragile X group of disorders — Fragile X syndrome, Fragile X-associated tremor/ataxia syndrome, and Fragile X-associated primary ovarian insufficiency. It also includes facts on the prevalence and diagnosis of Fragile X, contact information for the NFXF, and answers the questions, what conditions benefit from Fragile X research? And, is there a cure?
Getting a New Diagnosis
What Do You Do Now?
This is your guide on what to do next after learning of a new Fragile X diagnosis, including understanding the terms you find confusing or unsettling. (You may also want to visit our Newly Diagnosed page.)
Fragile X-Associated Tremor/Ataxia Syndrome
An Overview for Families and Providers
General information, statistics, onset, progression, diagnosis, and interventions and treatments for FXTAS, an adult onset neurological condition, seen in males and females, but more common and more severe in some male premutation carriers.
Adult Daily Activities
Volunteering, Day Programs & Employment
When looking into life after high school for your young adult, it’s important to include regular daily activities in place of school, whether it’s working at a paying job, volunteering with a local organization, participating in a day program, or attending post-secondary education.
learn more about all these topics
Fragile X Syndrome | FXS
Learn more about Fragile X syndrome prevalence, signs and symptoms in males vs. females, testing, and treatment and intervention.
Fragile X–Associated Tremor/Ataxia Syndrome | FXTAS
Learn more about FXTAS, including prevalence, signs and symptoms (including major, minor, most common), testing, treatment and intervention, how FXTAS relates to Fragile X syndrome, plus other valuable resources.
Fragile X-Associated Primary Ovarian Insufficiency | FXPOI
Learn more about FXPOI, including prevalence, signs and symptoms, testing, treatment and intervention.
Fragile X Syndrome Testing & Diagnosis
Information about who should be tested, lab tests, testing cost and reporting time, and other tests for children with developmental delays.
Reproductive Options
There are a number of ways to build a family for carriers, including prenatal diagnosis, preimplantation genetic diagnosis, egg donors, adoption, or conceiving naturally without any testing.
The Unique Challenges for Females with Fragile X Syndrome
The more we learn, the more effective our interventions and support structures become in assisting them to live personally fulfilling lives.
Consensus Documents on Treatments and Interventions for Fragile X
Treatment guidelines for Fragile X disorders, including behavioral issues, transitioning to adulthood, school and education, financial resources, FXTAS, FXPOI, and more.
What Defines a Carrier?
Why is there so much variability among male and female Fragile X carriers? There are a number of factors involved. Because the Fragile X gene is X-linked, gender plays a big role in determining who might show symptoms.