With Tracy Murnan Stackhouse
This video focuses on the importance of self-regulation in individuals with Fragile X syndrome. It was originally presented in response to the COVID-19 pandemic, but applies to all situations.
After watching the video, please let us know if you have any questions by filling out the form below and we’ll try to answer as many as we can or forward to Tracy for her input. Your questions and feedback are important to us.
More from Tracy Murnan Stackhouse and Ruth Meisnner from DevelopmentFX↗:
- How To’s of Sensory Diets in Fragile X Syndrome With Tracy Stackhouse
- Mindfulness and Me With Tracy Stackhouse & Ruth Meissner
author
Tracy Murnan Stackhouse, MA, OTR
Tracy Murnan Stackhouse is the co-founder of Developmental FX in Denver. She is a leading pediatric occupational therapist involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X syndrome and autism. Tracy teaches nationally and internationally on sensory integration, autism, and Fragile X. Tracy is a member of the National Fragile X Foundation Clinical Research Consortium, the Scientific & Clinical Advisory Committee, and the NFXF Advisory Council.
MORE COVID-19 RESOURCES
Female Power to Fight a Crisis — Presentation
Females living with Fragile X syndrome were asked to give advice to other females living with FXS on how to cope with this — or any future — crisis. Listen as Marcia talks through their advice and her own advice, built on decades of working with patients with Fragile X syndrome.
A COVID-19 Social Story from NFXF
The National Fragile X Foundation has created a social story to reflect the changing requirements that governments are enacting. There’s a lot of information — and misinformation — about COVID-19 out there, but there’s no doubt it’s impacted families in many, many ways.
How to Prepare for a Telehealth Visit
Drs Rebecca Shaffer and Ernie Pedapati tell you how to prepare for your telehealth visit, including behavioral checkups. They are with Fragile X Clinic at Cincinnati Children's Hospital. Their advice is applicable to all visits.
Supporting Your Child with Fragile X Syndrome During Special Times — Presentation
Barbara Haas-Givler shares her tips and methods for caregivers supporting children with Fragile X syndrome, starting with taking care of yourself first.