Leadership Partner Program
Leadership Partner Program You can make a difference. What It Means to Be an NFXF Leadership Partner You connect with our mission. You appreciate the value of the programs [...]
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10, 2018
Need a new search?
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11
10, 2018
How We Can Help
How We Can Help I or someone I care about was recently diagnosed The National Fragile X Foundation assists, educates, and provides personal support to individuals and families living with Fragile X disorders and inheritance. [...]
11
10, 2018
Daily Activities
Daily Activities Employment & Day Services There is a range of employment and day services you can consider for your young adult, including: A full or part time job, with or without a job coach. [...]
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10, 2018
24
09, 2018
Treatment and Intervention Recommendations for Fragile X
Fragile X consensus documents, written by professionals, are available to parents/caregivers to provide FXS, FXPOI, FXTAS treatment recommendations.
24
09, 2018
Your Child Has Been Diagnosed With Fragile X Syndrome: What To Do Next
What To Do Next Your child has just been diagnosed with Fragile X syndrome (FXS). Where do you begin? We have listed 10 things here to help you get your bearings. 1. Contact us [...]
21
09, 2018
Treatment and Intervention
Treatment & Intervention While there is currently no cure, there are many areas of treatment and intervention that can improve the lives of affected individuals and their families. Given the proper education, therapy, and [...]
4
06, 2018
Genetic Counseling and Family Support
CONSENSUS OF THE FRAGILE X CLINICAL & RESEARCH CONSORTIUM Genetic Counseling and Family Support Reading Time: TBD min.—|—Last Updated: March 2018—|—First Published: June 2011—|—Download PDF Genetic Counseling Family Support Additional Resources [...]
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12, 2017
A Fragile X Story 60 Years in the Making
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09, 2017
Planning Your Visit to a Fragile X Clinic
Why should you visit a Fragile X clinic? Because you won’t hear, “Fragile what?” You will have the opportunity to meet with a team of people who will be able to provide guidance in many [...]