The NFXF Blog
MySpa Welcomes the 13th International Fragile X Conference
MySpa at the InterContinental Hotel has graciously offered discounted prices off of their massages for conference goers, and we'd like to share them with you. Because you do have time... please take advantage of our [...]
RSVP to Mission to Lars Screening
Do you plan on watching Mission to Lars with us? We'd like to get a headcount of the number of attendees, so please let us know if you're going by Friday, July 20, 2012! The [...]
Preparing Yourself for the 13th International Fragile X Conference: Emotional Aspect and Making Friends
Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]
Preparing Yourself for the 13th International Fragile X Conference: What the Conference is Like and Activities
Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]
Preparing Yourself for the 13th International Fragile X Conference: Getting Ready and Registration
Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]
Today is the Last day for Online Registrations for the Conference
Register online before midnight tonight! After today July 11, 2012 we will be closing online registration, so make sure that you're registered! There will be limited registration available at the door, but we cannot guarantee [...]
International Fragile X Conference Reminders
June 2012 We’re less than a month away from setting sail for Miami so we hope you’ve already registered! If not, late online registration is still open until July 11, 2012. Afterwards, you must register [...]
Strategies for Day-to-Day Life
Mouse and Tracy present day-to-day strategies they've drawn from their evidenced-based practice and knowledge of the neurocognitive development of children with Fragile X syndrome.
A Response to Dr. Manny and His Cautions About Drugs for Autism and FXS
Robert Miller Executive Director National Fragile X Foundation Some of you may have recently read an online commentary by nationally syndicated, Foxnews.com columnist Dr. Manny Alvarez. Not only does “Dr. Manny,” as he [...]
July is bringing in the 10th Annual National Fragile X Awareness Day Campaign!
As we look to celebrate National Fragile X Awareness Day on July 22, we are moved by the people whose stories of hope you will glimpse below. They inspire us at the National Fragile X [...]
Supreme Court Takes Center Stage
Jeffrey Cohen Director of Government Affairs & Advocacy During the week of June 25th I was scheduled to be in DC to attend Congressional Hearings on Seclusion and Restraint and to meet with [...]
What are your plans for Awareness Day?
If you're not coming to Miami, the next best thing will be to check in regularly with us, starting with www.fragilex.org, where we'll have regular updates on National Fragile X Awareness Day and conference activities, [...]