The NFXF Blog
A Holistic Approach to Toilet Training
The challenges of toilet training can be magnified for families of children with Fragile X syndrome. It's not simply that toilet training is delayed, it often requires specific behavioral techniques that address their physical and behavioral phenotypes.
Verbal Perseveration! Verbal Perseveration!
Let's discuss verbal perseveration (VP), a very typical and pervasive aspect of language in Fragile X syndrome. Does VP interfere with daily living and activities? You bet your boots it can!
KS: Fragile X Fundraising Dinner
Join Northeast Kansas for their 1st Fragile X Fundraising Dinner! Good food, good times and best of all, a good cause. Don't miss this amazing opportunity!
Living Settings for Adults with FXS
As your child grows into a young adult, you may consider independent or semi-independent living settings. There are a variety of living settings across the United States for people with developmental disabilities.
PA: Educational Conference
Save the date for Southeast Pennsylvania's educational conference!
PA: Educational Conference
Save the date for Southeast Pennsylvania's educational conference!
WA: Fragile X Conference
Join our families in the northwest for their annual Fragile X Conference, featuring Dr. Randi Hagerman and Dr. Paul Hagerman!
WA: Fragile X Conference
Join our families in the northwest for their annual Fragile X Conference, featuring Dr. Randi Hagerman and Dr. Paul Hagerman!
MN: Beaver Island Brewing Event
Get excited for the Fragile X of Minnesota's 2nd Annual Fundraiser at Beaver Island Brewing Company! Good beer, good times and a good cause!
MN: Beaver Island Brewing Event
Get excited for the Fragile X of Minnesota's 2nd Annual Fundraiser at Beaver Island Brewing Company! Good beer, good times and a good cause!
FXS Autism and Behavior with Mouse and Tracy — Valentineʼs Day Edition — Webinar
Love is in the air! Our very good friends from Developmental FX join us to answer questions about Fragile X and behavior.
Passion for Community and Support Key to Success for Annual Conference
When Tammy and Andy Selinger received their daughter’s diagnosis in 1994, even their doctor was unsure what it meant. He just told them the test was positive for Fragile X. One of their first calls was to the National Fragile X Foundation, where they were connected to a long-time volunteer, Margaret Israel, who spent more than an hour and half on the phone with them. The support they found during such a critical time motivated them to get involved because as Andy says, “Nobody should get diagnosed without someone to talk to.”