The NFXF Blog
11 Tips for When Your Young Adult Moves Out
Your child must learn to depend on someone other than you. It's an emotional time, but their independence is what you've been working toward all these years.
Genetics 101: Fragile X Inheritance — Webinar
Whether you’re a newly-diagnosed family in the fragile X community or have been living with the diagnosis for several years, please join us as we speak with Brenda Finucane (Geisinger, ADMI Associate Director & Professor) about the nuts and bolts of Fragile X inheritance.
Summary of Guidelines for Establishing a Private Home
Some families may not want their child to live in a home/facility that is offered by the local disability organization.
2017 NFXF Summer Student Fellowship Awardees
Each year, the National Fragile X Foundation funds one or more summer student research fellowships at $2500 each through the Summer Student Fellowship Research Fund.
Visiting the Dentist
I learned pretty quickly that visits to a dentist were going to be a challenge for my son, Ian. I demonstrated the process over and over again. I helped him brush his teeth, encouraged him to brush his own teeth, tried different toothbrushes and toothpaste. I needed Bonnie.
NJ: Moms' Night Out
NJ/NY Moms' Night Out Date: June 1, 2017 Time: 7:00 PM - 9:00 PM Location: Cheesecake Factory at the Mall at Short Hills 1200 Morris Turnpike Short Hills, NJ 07078 Near Macy's, on the north [...]
Fragile X Resource Center of Missouri Hosts Dr. Elizabeth Berry Kravis
Fragile X expert, Dr. Elizabeth Berry-Kravis, presented to a great crowd and discussed issues our loved ones with Fragile X face in puberty and adulthood.
CA: Adaptive Sports and Education Night
Jacky's X-Men, along with Fragile X Northern California, will be raising awareness on 7/29 at Avaya Stadium! We will be joined by Pacific Autism Center for Education, Hope Services and several other non-profits to raise awareness!
[VIDEO] NFXF Rings the NYSE Opening Bell
We were invited to the New York Stock Exchange to ring the opening bell, giving us the amazing chance to raise awareness for Fragile X.
Ovid Therapeutics: Single Dose Pharmacokinetics (PK) Study
Ovid Therapeutics A Phase 1 Single Dose PK Study in Adolescent Subjects With Fragile X Syndrome or Angelman Syndrome The trial is a Phase 1 Single Dose PK [...]
Fragile X Resource Center of Missouri Hosts Business Meeting
On March 23, the Fragile X Resource Center of Missouri hosted a business meeting for all members of the group. Roughly 20 individuals enjoyed dinner, followed by the business of the group. Events since the last meeting were reviewed, along with upcoming events and opportunities. We enjoyed catching up with other following the conclusion of our business.
Research: UCD Language Intervention in Treatment for FXS
UC Davis MIND Institute [mpc_image preset="preset_2" image="11147" margin_divider="true" margin_css="margin-bottom:15px;" image_size="full" force_fullwidth="true" image_opacity="100" effect="none" image_hover_opacity="100" overlay_background="rgba(255,255,255,0.35)" overlay_enable_lightbox="true" mpc_ribbon__disable="true" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="900" animation_in_delay="300"] Now Recruiting Research Participants: Combining Lovastatin and a Parent-Implemented Language Intervention in [...]