Constituents (aka YOU) connecting with your members of Congress and their staff is THE KEY to our successful advocacy program. You make it possible.
The pillar of the program is Advocacy Day. Every spring, for over 20 years, we gather in Washington, D.C., in a concerted, joint effort to raise awareness of Fragile X in Congress and to ask for research funding and policies that provide the opportunity for a better life for those living with Fragile X.
As you might expect, we are planning a virtual NFXF Advocacy Day for 2021. While gathering in-person in Washington is a fun experience many families look forward to, we hope this option helps expand the number of Fragile X advocates who can participate, especially from states that are much farther from our capital.
What does participation look like?
We take care of all of the pre-planning, including your training:
- Training: You receive training and will be paired up with a mentor if you want additional one-on-one guidance.
- Materials: You receive all of the materials you’ll need.
- Meetings: Your meetings are scheduled for you and everything is coordinated with other advocates from your area.