Learn in this webinar the pathological progression of several longitudinally followed patients with FXTAS at the UC Davis Fragile X Research and Treatment Center.
Learn about research and findings from a study understanding the impact of COVID-19 and the pandemic on children with FXS.
Hilary Rosselot moderates this discussion on medications for Fragile X with an expert panel that includes Drs. Elizabeth Berry-Kravis, Craig A. Erickson, Randi J. Hagerman, Reymundo Lozano, and Nicole Tartaglia.
This session discusses specific challenges that arise during puberty and adolescence while also providing youth and their caregivers with some strategies and resources to assist in navigating the teenage years. Presented by Holly Harris, MD, FAAP and Dinah Godwin, LCSW.
This conference session discusses common sleep problems and some strategies for treating them in children with FXS, including assessments, behavioral techniques, and medications commonly used to treat sleep problems. Presented by Carol Delahunty, MD.
Dr. Lauren Schmitt, a licensed clinical psychologist with extensive training in cognitive functioning in individuals with neurodevelopmental disorders, discusses how behavioral inflexibility is likened to being stuck — a state in which the individual is unable to move on from a current behavior or thought.
How to recognize behavioral challenges in FXS and the most common behavioral difficulties and treatment options at each developmental stage. Specific tips are shared that families can easily implement with their children or adolescents.
Explore this premutation webinar to learn more about Fragile X and Associated Tremor/Ataxia Syndrome (FXTAS) with our expert panel: Peter K. Todd, MD, Randi J. Hagerman, MD, David Hessl, PhD, and Dr. Deborah A. Hall, MD.
Experts in the field discuss support and solutions for females with Fragile X in this panel discussion and Q&A. Join Jennifer Barber, Susan Howell, Barbara Haas-Givler, Nicole Tartaglia, Rebecca Shaffer, and Laurie Bridges.
This session discusses specific strategies to help promote and support essential social skills for those with Fragile X. Presented by Barbara Haas-Givler.
Explore this deep dive into education strategies for Fragile X syndrome. Moderated by Linda Sorensen and featuring Tracy Murnan Stackhouse and Anne Hoffmann.
This session explores ways to promote inclusivity at a young age for children with Fragile X syndrome. Presented by Jeanine Coleman, PhD.
Active sensory and body-based strategies are evidence-based to directly reduce hyperarousal, tame anxiety, and limit the impact of sensory reactivity. Presented by Tracy Murnan Stackhouse.
A panel of experts present research-based information on the factors that promote or hinder the transition to independence of young adults with FXS after completion of high school and formal education. Panelists Leonard Abbeduto, Jessica Klusek, Angie Thurman, and Julie Lounds Taylor also take questions from the audience.
Rebecca Shaffer discusses the signs of emotion dysregulation in Fragile X syndrome and ways to respond and practical strategies for families and caregivers.
