By Hilary Rosselot
Tetra Shares Details about their BPN14770 Trials in Fragile X syndrome
Tetra Therapeutics is officially recruiting 12-45 year old males with Fragile X syndrome for their trials on BPN14770.
Chad Coberly and Francie Kivel from Tetra Therapeutics sat down with the NFXF to share the details you need to know about their current trials, including:
- A brief explanation of the trials
- Eligibility criteria, or what criteria participants need to meet in order to be able to participate in the trial
- Study details, like the number of visits, number of blood draws, and travel reimbursement
- Information about the open label extension, or the trial period for guaranteed access to the study drug upon completion of the initial study
- An estimate of when can we expect to know the results of the trials
Watch this short video to learn more about the Tetra trials:
If you are interested in learning more about the Tetra trials, check out Tetra’s MyFXResearch post.
If you are interested in participating in the trial, complete the contact form at the bottom of the MyFXResearch post to send your information to a nearby site.
about
Hilary Rosselot
Hilary joined the NFXF team in 2019. Prior to joining the NFXF team, she worked at the Cincinnati Fragile X Research and Treatment Center for over five years. She has experience as a clinical research coordinator across many types of clinical trials and served as the clinical research manager for the Cincinnati program. She earned a bachelor’s degree in psychology, a master’s, and is a SOCRA certified clinical research professional (CCRP). She enjoys time with family and friends, a great book, a strong cup of coffee and, of course, a good laugh!
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Language Across the Lifespan in Fragile X Syndrome: Characteristics and Considerations for Assessment
RESEARCH RESULTS ROUNDUP — Describe cognition and language in FXS using the data from a large group, while trying to understand if the standard assessments are feasible (able to be done accurately) and valid (reflect reality) in FXS and then compared the assessment results to caregiver report.
Delineating Repetitive Behavior Profiles Across the Lifespan in Fragile X Syndrome
RESEARCH RESULTS ROUNDUP — What restricted and repetitive behaviors looked like in 154 individuals with FXS, 2–50 years old, based on age, ASD diagnosis, and IQ score.