Moms, Siblings and Self Advocates Night Out!
Rhode Island area Fragile X families had the pleasure of gathering together on April 12th for a fun night out. Even some parents from neighboring states joined the fun! The group of parents met at a local restaurant, called Safehouse, and parents were able to share experiences and resources.
This group will plan on meeting a few times through the year, and they hope that more families will see their events and join them in the future! If you’re interested in learning more, contact parent volunteer Marcella Almeida at fxlittlerhodywarriors@yahoo.com.
Together, We’re Stronger!
author
Kristin Bogart
Kristin joined the NFXF team in 2019. She has over 20 years of experience in fundraising and non-profit management, event planning, and board and volunteer development. She earned a bachelor’s degree in economics and a master’s in public administration. Kristin loves spending time with her two teenage sons and in the company of friends, and enjoys gardening, running, and hiking in the Santa Cruz mountains.
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Fragile X Advocacy Newsletter – June 2024
Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!