Patrick, 19 non verbal, affected, full mutation with sister, Kelley, 17, full mutation at the beach last summer. This picture involves one of Patrick's favorite things to do with his family. We go to Cape [...]

Hi, we're Marc and Rachael. We have three children ages 11, 5 and 1... one boy and two girls. They all have Fragile X syndrome. Our oldest, our son, embraces his uniqueness and gets so [...]

When our son Jackson was diagnosed with Fragile X Syndrome before his third birthday, we went through many emotions. It took awhile to accept that "God doesn't give you anything you cannot handle" and "Everything [...]

My name is Winston and I'm 6 years old. While my family gives me lots of presents for Christmas, I most enjoy loving on my younger brother, Spencer. It is the one gift I can [...]

We found out our oldest child Jacob had Fragile X syndrome 3 days after his 3rd birthday in October of 2003. Shortly afterward we discovered his little sister Samantha had the full mutation too... she [...]

Josh is a 17 year old, happy and charming young man... one of the kindest and most compassionate teenagers I have ever known. He is severely affected with Fragile X syndrome and Autism and I [...]

"Nothing great in the world has been accomplished without passion" ~ Hegel Darienne has a passion for dance. She began dancing at 4 years old and danced for 15 years, taking classes in ballet, tap, [...]