Fragile X Clinics
The Fragile X Clinical & Research Consortium FIND A U.S. CLINIC FXTAS-SPECIFIC CLINICS INTERNATIONAL CLINICS The Fragile X Clinical and Research Consortium (FXCRC) was created in 2006 by the National Fragile X Foundation [...]
Reasons to Visit a Clinic
While every Fragile X clinic is set up a little differently, they all offer similar services. They are staffed by people who understand Fragile X. Examples of evaluations offered at clinics through an initial intake include: medical, [...]
Planning Your Visit to a Fragile X Clinic
Why should you visit a Fragile X clinic? Because you won’t hear, “Fragile what?” You will have the opportunity to meet with a team of people who will be able to provide guidance in many [...]
REDIRECTED-Reasons to Visit a Clinic
Why You Should Visit a Clinic By Jayne Dixon Weber While every Fragile X clinic is set up a little differently, they all offer similar services. They are staffed by people who understand Fragile X. [...]
Cliniciansʼ Experiences with the Fragile X Clinical and Research Consortium
Research Summary // Suggestions for improvement included additional financial support and increased utilization of collected patient data for research purposes.
Importance of Fragile X Specialty Clinics
Research Summary // Appropriate clinical management of affected individuals and their family members have become critical in addressing medical needs to improve quality of life.