Posted on September 8, 2017
Autism, Behavior, Clinical Practices, Consensus Documents, Daily Living Strategies, Education, Financial Resources, Fragile X Clinics, Fragile X Syndrome, FXPOI, FXTAS, Genetics, Guidelines, Hyperarousal, Medication, Research, Seizures, Sensory Integration, Sleeping, Toilet Training, Treatment and Intervention
FXCRC and Clinics / Treatment and Intervention
The Guidelines represent expert consensus and not evidence-based studies. The clinical committee of the Fragile X Clinical & Research Consortium (FXCRC) could be thought of as a “consensus panel” since virtually every clinician in the USA seeing and managing a large number of patients with Fragile X syndrome and other Fragile X-associated Disorders is represented.
Why should you visit a Fragile X clinic? Because you won’t hear, “Fragile what?” You will have the opportunity to meet with a team of people who will be able to provide guidance in many areas of raising your child or children. Just as importantly, once you establish a relationship with the Fragile X doctor,
While every Fragile X clinic is set up a little differently, they all offer similar services. They are staffed by people who understand Fragile X. Examples of evaluations offered at clinics through an initial intake include: medical, speech, occupational, physical and behavioral therapy, and genetic counseling. Additional specialist services may include referrals to psychiatrists, psychologists, neurologists, cardiologists,
Children’s Hospital Fragile X Clinic and the Colorado Fragile X Community Support Network group would like to invite you to participate in this incredible educational event! We are bringing together top professionals in our area for this one-day educational conference. Speakers: Karen S. Riley, PhD, Dr.Nicole Tartaglia, Terry Katz, PhD & Katie Maron, Rena Pitlik, MS, CCC-SLP, Erica Lindsey, MS Special Education,