The NFXF Blog
ABLE ACT Passes Senate
WASHINGTON, D.C. – Culminating a nearly eight year effort spanning four sessions of Congress the ABLE Act passed the Senate late Tuesday night with a vote of 76-16. The bill overwhelmingly earlier this [...]
ABLE Passes House
Eight Years of Hard Work by Advocates, One Step Closer to Reality Today the U.S. House of Representatives passed the Achieving A Better Life Experience Act. NFXF advocates have been urging their members of Congress to [...]
UMich: Study Opportunity for FXS Dads
the University of Michigan Researchers at the University of Michigan are looking for fathers of children with Fragile X syndrome to participate in a survey about their parenting experiences. Previous research has focused on [...]
Summer Student Fellowship: 2014 Summaries
The future of Fragile X research depends on inspiring and encouraging new generations of researchers to push Fragile X forward. That’s why we offer the annual Summer Student Fellowship, which assists young researchers in their [...]
“Happy Birthday” Meltdowns and Other Behavioral Conundrums
“Why does my child cry when people sing ‘Happy Birthday’ to her?” Many years ago when I first heard this from a parent of a girl with FXS, I thought it was rather strange and perhaps something unique to this child’s behavioral repertoire.
Neuroimmunology Meets Neurodevelopmental: Innate and Adaptive Immune Function in FXS
Neuroimmunology is a relatively new field at the intersection of neuroscience and immunology. Its purpose is to describe how immune function affects brain development and function, and how signaling between cells in the brain affect levels [...]
AZ: Someburros! Fundraiser
20% of every order to Fragile X of Northern Arizona* Date: November 21, 2014 Time: 09:00 AM - 09:00 PM Location: Someburros!320 South Regent St. Flagstaff, AZ 86004 Hosts: Fragile X of Northern Arizona [...]
UC Davis: Spoken Language Treatment Study for Fragile X Syndrome
UC Davis MIND Institute We are interested in learning if a behavioral treatment called Parent- Implemented Language Intervention will support spoken language development in boys with Fragile X syndrome (FXS). This study might be [...]
2013 Annual Report
Message From Jeffrey | Why Your Support Matters | Support | Awareness | Advocacy | By The Numbers | Financials It was an honor and a privilege to serve as the Interim Executive Director for [...]
How Common are Medical Problems in Fragile X Syndrome?
Are medical problems more common in individuals with Fragile X syndrome than in typically developing children? To help answer that question and guide pediatricians in caring for individuals with FXS, clinicians from the FXCRC set out to determine the most common medical problems found in individuals with FXS.
GA: Month Long Holiday Fundraiser
Greater Atlanta Fragile X Vendor Holiday Fundraiser Date: November 30, 2014 Time: Location: Atlanta, GA 30327 Hosts: Greater Atlanta Fragile X Details Three great companies, one great cause - Fragile X!! With the [...]
Fragile X Syndrome: NIH Research Study
NIMH This research seeks to understand how protein formation in the brain is affected in Fragile X syndrome (FXS). Researchers will measure the rate at which the brain makes proteins (protein synthesis) and will [...]