The NFXF Blog
Katie Couric to feature Fragile X on Yahoo News!
Katie Couric and her news team contacted us about featuring Fragile X on Yahoo News with Katie Couric. We’re excited to announce that they will be airing the piece soon! The news piece features interviews with NFXF Co-Founder Dr. Randi Hagerman, NFXF Board member Brain Silver and his wife Shari...
We’re Going Virtual: Update your Address Books!
The National Fragile X Foundation is closing the doors to our brick and mortar office, and our new mailing address will be located in Washington, DC. So please, update your address books! The biggest reason [...]
Fragile X Syndrome and Autism Spectrum Disorder: Similarities and Differences
It is important to note that it is more common for a child to be diagnosed with ASD and then to receive an additional diagnosis of FXS.
ABLE ACT Passes Senate
WASHINGTON, D.C. – Culminating a nearly eight year effort spanning four sessions of Congress the ABLE Act passed the Senate late Tuesday night with a vote of 76-16. The bill overwhelmingly earlier this [...]
ABLE Passes House
Eight Years of Hard Work by Advocates, One Step Closer to Reality Today the U.S. House of Representatives passed the Achieving A Better Life Experience Act. NFXF advocates have been urging their members of Congress to [...]
UMich: Study Opportunity for FXS Dads
the University of Michigan Researchers at the University of Michigan are looking for fathers of children with Fragile X syndrome to participate in a survey about their parenting experiences. Previous research has focused on [...]
Summer Student Fellowship: 2014 Summaries
The future of Fragile X research depends on inspiring and encouraging new generations of researchers to push Fragile X forward. That’s why we offer the annual Summer Student Fellowship, which assists young researchers in their [...]
“Happy Birthday” Meltdowns and Other Behavioral Conundrums
“Why does my child cry when people sing ‘Happy Birthday’ to her?” Many years ago when I first heard this from a parent of a girl with FXS, I thought it was rather strange and perhaps something unique to this child’s behavioral repertoire.
Neuroimmunology Meets Neurodevelopmental: Innate and Adaptive Immune Function in FXS
Neuroimmunology is a relatively new field at the intersection of neuroscience and immunology. Its purpose is to describe how immune function affects brain development and function, and how signaling between cells in the brain affect levels [...]
AZ: Someburros! Fundraiser
20% of every order to Fragile X of Northern Arizona* Date: November 21, 2014 Time: 09:00 AM - 09:00 PM Location: Someburros!320 South Regent St. Flagstaff, AZ 86004 Hosts: Fragile X of Northern Arizona [...]
UC Davis: Spoken Language Treatment Study for Fragile X Syndrome
UC Davis MIND Institute We are interested in learning if a behavioral treatment called Parent- Implemented Language Intervention will support spoken language development in boys with Fragile X syndrome (FXS). This study might be [...]
2013 Annual Report
Message From Jeffrey | Why Your Support Matters | Support | Awareness | Advocacy | By The Numbers | Financials It was an honor and a privilege to serve as the Interim Executive Director for [...]