NFXF International Fragile X Conference Scholarships
NOTICE
Scholarship applications for the NFXF 19th International Fragile X Conference will be listed here spring 2024.
Thanks to the generosity of the NFXF Community Support Network chapters, community partners, and private donors, conference scholarships are traditionally made available to assist individuals, families, self-advocates, or siblings who might not otherwise be able to attend the conference due to limited financial resources.
About the Conference
The International Fragile X Conference is held every other year and is the largest of its kind in the world. The event brings professionals, caregivers, self-advocates, and family members together in one place. For families and individuals new to Fragile X it can provide much-needed information and guidance. While the conference can seem overwhelming at first, you will meet the most welcoming group of people you have ever met.
For all community members, it’s where you can find friendship and solidarity, sessions focusing on strategies and techniques for living with Fragile X, and an opportunity to discover emerging research and opportunities.
More Conference News
Reproductive and Gynecologic Care for Women with the Fragile X Premutation — Presentation
Care for women with FXPOI who struggle with infertility and the health effects of early onset ovarian insufficiency, including hot flushes, night sweats, and risks of osteoporosis. With Heather Hipp, Jennifer Barber, and Keiko Mathewson.
Expert Panel Discussion on Young Children With FXS — Presentation
A discussion of the issues around caring for young children with Fragile X syndrome, including speech development, integrating with their typical siblings, occupational therapy, and behavioral issues. With Anne Hoffmann, Jennifer Epstein, Jeanine Coleman, and Tracy Murnan Stackhouse.
Discussion on Medications — Panel
Our expert panel of Drs. Erickson, Berry-Kravis, and Hagerman discuss medications including what age anxiety medications should be considered, medications for aggressive behavior, and side effects.
Transitioning to Independence in Adulthood: What Helps? What Are the Barriers? — Panel
Our expert panel, Leonard Abbeduto, Jessica Klusek, Julie Lounds Taylor, and Angela John Thurman, present research-based information on the factors that promote and hinder the transition to independence for adults with Fragile X syndrome.
Female Power to Fight a Crisis — Presentation
Females living with Fragile X syndrome were asked to give advice to other females living with FXS on how to cope with this — or any future — crisis. Listen as Marcia talks through their advice and her own advice, built on decades of working with patients with Fragile X syndrome.
Supporting Your Child with Fragile X Syndrome During Special Times — Presentation
Barbara Haas-Givler shares her tips and methods for caregivers supporting children with Fragile X syndrome, starting with taking care of yourself first.