NFXF International Fragile X Conference Scholarships
NOTICE
Scholarship applications for the NFXF 19th International Fragile X Conference will be listed here spring 2024.
Thanks to the generosity of the NFXF Community Support Network chapters, community partners, and private donors, conference scholarships are traditionally made available to assist individuals, families, self-advocates, or siblings who might not otherwise be able to attend the conference due to limited financial resources.
About the Conference
The International Fragile X Conference is held every other year and is the largest of its kind in the world. The event brings professionals, caregivers, self-advocates, and family members together in one place. For families and individuals new to Fragile X it can provide much-needed information and guidance. While the conference can seem overwhelming at first, you will meet the most welcoming group of people you have ever met.
For all community members, it’s where you can find friendship and solidarity, sessions focusing on strategies and techniques for living with Fragile X, and an opportunity to discover emerging research and opportunities.
More Conference News
Health Concerns for Women Who Carry an FMR1 Premutation — Presentation
Emily Allen discusses some of the health concerns of women who are premutation carriers and shares research findings from her group at Emory University.
Sophia James: Life as a Sibling of Someone with Fragile X Syndrome
Sophia James, a top 10 finalist in the latest season of American Idol, talks about being a sibling to her brother James, who has Fragile X syndrome. There is so much in what she says — take the time to watch and read it. It’s well worth your time.
Caring for Adults with Fragile X Syndrome — Panel
Our panel discussion from the 2020 conference on adult issues in Fragile X syndrome. Presented by Elizabeth Berry-Kravis, Marcia Braden, Jayne Dixon Weber, Craig Erickson, and Randi Hagerman.
Medications for Fragile X: Anxiety, Irritable Behaviors & Aggression — Presentation
Drs. Berry-Kravis and Erickson discuss currently available supportive medications for treating anxiety and irritable, agitated, and aggressive behaviors in Fragile X syndrome.
Premutation Carrier Concerns — Panel
Panelists Randi Hagerman, Heather Hipp, Emily Allen, and Marsha Mailick helps answer what it means for your health, your family, and your future at the 17th International Fragile X Conference.
Fragile X-Associated Tremor/Ataxia Syndrome 101 — Presentation
Neurologists Drs. Deborah Hall and Maureen Leehey provide an overview of FXTAS, a summary of the clinical features in the disease, and treatment options, including surgery, for FXTAS patients.