What would you like others to know about him? Nicholas Rhines

He is helpful and very patient when we drag him all over the place.

What is your favorite thing about him?

His smile is amazing and he is so fun to hang out with.

If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be?

People with Fragile X have a very genuine heart. School can be a challenge but if you stay involved you can make it through. Once you get through the school years it is easier for them to be themselves.

What is your advice for newly diagnosed families?

Take a breath. Know there is a lot of help. Respect your child for who they are. Fight for things they need. Try to keep them in social situations.

What do you want your community to know about Fragile X?

People with Fragile X want so much to be involved with other people. They want to make friends and they want to be included in events and activities.

About Faces of Fragile X

We asked parents, caregivers, and others to answer a few questions about their loved ones with Fragile X. These are the Faces of Fragile X, and This is Fragile X. If you would like to learn more about Fragile X, start here.

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