Kara and Steve Frech received the diagnosis that both of their sons inherited Fragile X syndrome in 2006. Soon after, Kara and her mother attended their first International Fragile X Conference in St. Louis.
Filled with information, Kara integrated and applied that knowledge into successful strategies for each of her sons. Kara and Steve shared information and webinars about daily living strategies and treatments from internationally recognized experts with family, teachers, and therapists.
Their son Andrew manages his high school freshman basketball team, plays sports, and participates in the Best Buddies program. Jason is a social butterfly and represents his homeroom and loves to play challenger baseball. Having two sons diagnosed with Fragile X syndrome was unexpected, but Kara found support through the National Fragile X Foundation that continues today.
Jason leading the pack at the 2018 Southeast PA X Strides
In 2012, Kara felt compelled to give back and became a leader in the Community Support Network for the National Fragile X Foundation. She has held many events over the years and supports other families in Southeastern Pennsylvania.
Kara is the original creator of X Strides, a now annual fundraising event shared by the entire community Over 300 people attended the first X Stredes and nearly quadrupled their fundraising goal. This is just one way Kara stands up to Fragile X.
The support and information Kara and Steve have received over the years are integral to Andrew and Jason thriving in their daily lives.
Will you join Steve and Kara in standing up to Fragile X? You can donate securely online or discover other ways to give.