A message from the Jeffrey Cohen, NFXF interim executive director. >> I recently attended a meeting focusing on "The Future of Fragile X Public Health Research.” One of the hot topics was how the collection of public health data can improve how we measure success in clinical trials results....
Thanksgiving, of course, always reminds me how much I have to be thankful for: family, friends, colleagues, and the incredibly dedicated community of Fragile X professionals. This year, I especially want to single out all [...]
Robert Miller, Executive Director of the NFXF I don't need to tell you that Fragile X syndrome can have a big impact on families! But exactly what is that impact and what can [...]
Facebook, Twitter, email, blogs, conferences, seminars, group barbecues and long phone conversations. What do these have to do with each other and with Fragile X? They are all places where one can go, or tools [...]
