Advocacy From Home: How to Establish Fragile X Awareness Day

By |2013-05-13T12:16:22-04:00May 13, 2013|Advocacy, Central Illinois, Eastern Massachusetts|

We often hear from parents who say they really wish they could do more for Fragile X awareness but cannot due to lack of time, money or childcare. So we are here to say there are multiple ways to get involved and spread awareness right from your own home. One terrific way is to establish a Fragile X Awareness Day in your state. It may sound intimidating but the process is not really a difficult one.

A 10-Year Roaring Success for Central IL LINKS Group’s Annual Walk!

By |2013-05-08T12:29:33-04:00May 8, 2013|Central Illinois|

Ten years ago, Andrea (Schnarr) Wronkiewicz approached me about hosting a Walk for Fragile X in honor of my children—Parker and Allison—as her senior high school class project. That first walk brought together 150 people and raised $5,500. Our group—the Central IL Fragile X Group, with my co-leader Amy Zeleznik—partnered with Andrea again on Saturday, April 20, to host the 10th Annual Walk for Fragile X in Canton, IL.