By Hilary Rosselot
Partnering with the National Ataxia Foundation to Raise Awareness for FXTAS
In September, we partnered with the National Ataxia Foundation (NAF) on a webinar series about FXTAS.
Our first webinar was “All About FXTAS,” during which attendees learned about the mechanisms of FXTAS, the diagnostic journey, and what to expect regarding FXTAS clinical care from Dr. Peter Todd.
Our second webinar was “Research and Treatment Development for FXTAS” with Dr. David Hessl, who gave an overview of the current state of research and drug development related to FXTAS.
At the conclusion of both webinars, the audience had many interesting questions, and we appreciated the opportunity to raise awareness for the specific type of ataxia that impacts our Fragile X community — FXTAS.
Missed the Webinars?
You can watch a recording of both here or on NAF’s YouTube channel:
All About FXTAS
Research & Treatment Development for FXTAS
We thank the NAF for their efforts to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia. We have similar missions and visions for the world, and it is a pleasure to work with like-minded groups toward achieving that shared vision.
about
Hilary Rosselot
Hilary joined the NFXF team in 2019. Prior to joining the NFXF team, she worked at the Cincinnati Fragile X Research and Treatment Center for over five years. She has experience as a clinical research coordinator across many types of clinical trials and served as the clinical research manager for the Cincinnati program. She earned a bachelor’s degree in psychology, a master’s, and is a SOCRA certified clinical research professional (CCRP). She enjoys time with family and friends, a great book, a strong cup of coffee and, of course, a good laugh!
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