We Want to Hear from You!

Our Fragile X community is simply the best and we want an opportunity to learn from you! Help educate us on your tried and true tips, tricks, and strategies that you use in your everyday life.

What tools (visual charts, products, books, etc.) have you found helpful when completing daily tasks? What are questions you have asked of your healthcare providers that you think others would benefit from asking as well?

This information can encompass all areas of Fragile X — Fragile X syndrome, FXPOI, and FXTAS. After gathering tips, tricks, and strategies, we will share them with the Fragile X community so that others may benefit from your knowledge.

If you have any questions, please reach out to us.

Share Your Daily Living Strategies


You can reach out to Kristin Bogart using the contact info or our contact form below.

Kristin Bogart, Senior Director, Development and Communications, NFXF

Kristin Bogart,
Senior Director, Development and Communications
(202) 747-6209