On March 20, 2025, President Trump issued an Executive Order that aims to significantly change the management of education at the federal level. The order directs the Secretary of Education to facilitate the closure of the Department of Education and return authority to the States.
This order raises significant concerns about its impact on all students, particularly those with disabilities. The federal government has long advocated for equal educational opportunities, providing crucial protection through policies like the Individuals with Disabilities Education Act (IDEA). The Department of Education plays a vital role in supporting special education, training teachers, advancing research, and enforcing disability rights laws. If this department is dismantled or reduced, it could jeopardize these protections and could lead to inconsistent access to special education services.
It is important to recognize that the Department of Education and policies like IDEA are federally mandated. While the President can issue executive orders, which can influence the operations of federal agencies, any significant changes or elimination to IDEA or the overall structure of the Department of Education would require legislation passed by both the House of Representatives and the Senate.
Why It Matters for the Fragile X Community
Without a federal agency to enforce disability rights, families may encounter greater challenges in accessing and advocating for their loved one’s education. Some areas might lack the resources or commitment to provide the essential accommodation and therapies needed for individuals living with Fragile X to succeed academically and socially. This could result in long-term negative effects on educational successes, employment opportunities, and make it harder for families to access the support their children need to thrive in school and beyond.
Make Your Voice Heard
Reaching out to your legislators only takes a few minutes and sends a strong message to Congress that protecting the rights of individuals with Fragile X is important to you and your community.
To send a message to your legislators and advocate for protecting the Department of Education, visit the Arc’s Tell Congress: Protect the Department of Education.
A special thank you to The Arc for creating this powerful tool, empowering all communities to take action.
Your advocacy is a key part of ensuring continued support for individuals with Fragile X. Let’s work together to make our voices heard!
about
Missy Zolecki
Missy joined NFXF team in 2018 after being an active volunteer since 2010. Missy organized several fundraisers and educational workshops while serving in her volunteer role. Missy is the mother of three children. Her eldest son, Matt, lives with Fragile X syndrome. Prior to joining the NFXF team, Missy had worked as a nurse for more than 20 years. She enjoys traveling and spending time with family and friends.
learn more
Fragile X Advocacy Newsletter – October 2024
Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!
A Reflection on the CEO Commission’s 2024 Hill Day
NFXF Executive Director, Hilary Rosselot, and Advocacy Ambassador, Dillon Kelley, attended the CEO Commission for Disability Employment’s Employment Summit and Hill Day in September 2024. It was an inspiring, action-packed few days, and they are excited to share more about their experience and why it matters to the Fragile X community.