National Fragile X Awareness Month is a group effort. We prepare each July to unite and keep our communities informed about Fragile X, ensuring that one more doctor, one more teacher, one more neighbor knows about our cause and makes life easier for all families living with Fragile X.
And we couldn’t do it without you!
We want to thank you for helping us raise over $72,000 through the NFXF Let ‘Em Know 5k for National Fragile X Awareness Month. Thank you to everyone who ran, walked, hiked, biked and skated to our goal. And thank you to those who generously donated to the campaign.
You helped us reach our goal and even surpass it! As promised, the Blount family donated an additional $30,000 – one more dollar for every two that your efforts raised!
The funds you raised will help go toward furthering our support and education efforts, keeping the FX community informed through our online activities, and our advocacy efforts in Washington, D.C., to make sure that everyone is not only aware of Fragile X but also understands why it is crucial to keep moving forward .
Congratulations to the Winners of our NFXF Let ‘Em Know Event
We are pleased to award the special prizes to:
- Cheryl Lancaster who raised the largest amount for Let ‘Em Know in total, for a total of $8,630! Amazing work!
- Cynthia Miller who reached the most number of people with a total of 73 donations! Let ‘Em Know indeed!
They will each receive $250 Amazon Gift Cards in recognition of their efforts.
A shout-out also goes to the teams who banded together to reach the top!
These are just a few of the over 300 participants, teams and donors who contributed to making this Awareness Month a resounding success. We’re grateful for each and every one of you who truly Let ‘Em Know this year!
As a new community Support Network Co-leader in Central Florida, I felt Let ‘Em Know 5k was an extremely easy and effective way to accomplish several of our goals. Not only did it enable us to raise an unbelievable amount of money to share with the National Fragile X Foundation, but we were also able to spread awareness for Fragile X-associated Disorders.
Numerous people expressed how they never heard of Fragile X and weren’t aware how our daughter, Taylor, and myself were affected by the genetic mutation. We are truly surprised by the amount of support and genuinely touched by the generosity of so many of our friends, family, and business associates.
We loved the event and it was the first time we participated. Wyatt’s diagnosis came three years ago and he’s in such a great place now that we were able to really focus on outreach, awareness and advocacy. We live in Fairfield, CT and have two boys, Wyatt (10) and Cal (8 ½). Wyatt is an incredible child with so many amazing strengths! He was so proud to participate in the Let ‘Em Know 5K and will still tell everyone that he won it!
We walked on a Sunday in July with family and some dear friends. Our boys loved it and we can’t wait to participate next year and hope that our personal walk/run will be bigger and better than this year.
Awareness is key. So many people have never heard of Fragile X – especially teachers – which is shocking since they are the ones working with our children. I can’t think of anything more important than spreading the word.