Our Programs

The NFXF pursues our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure — through our three strategic priorities: building community, raising awareness, and facilitating research.

Our Programs

The NFXF pursues our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure — through our three strategic priorities: building community, raising awareness, and facilitating research.

Building Community

Every day a new family receives a diagnosis of Fragile X, and the NFXF is here to support families with 1:1 consultations, resources, treatment recommendations, and educational materials. Our Community Support Network of chapters and community partners helps to untangle the complexities of the local obstacles and resources and provides much-needed social connections for families. Our top priority is to help make every day with Fragile X –  a little bit better. 

Education and Awareness

The NFXF is the global leader in providing relevant and cutting-edge Fragile X content with our extensive digital resources, virtual conference sessions, webinars and videos, available to the entire Fragile X community. Through our advocacy efforts, we raise awareness and secure federal government research funding and advance legislative initiatives meant to benefit the entire intellectual and developmental disabilities population. 

Facilitating Research

The NFXF launched the NFXF Research Readiness Program to help industry partners design clinical trials that consider the needs of Fragile X patients and families first, while also identifying more successful targeted outcome measures. To better connect families with research opportunities that will ultimately provide better treatments for Fragile X and eventually a cure, we also host MyFXResearch, a website portal that provides searchable participation information, all in one convenient location. Helping patients and their families understand the value of research and their participation is addressed in our newest e-book Fragile X Research 101.

our three
strategic priorities
3 Strategic Priorities