With Heather Hipp, MD and Victoria Wilkins, MD
Reproductive health is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning. These topics can be challenging to cover, but they are important!
Additional resources and controls for this video are accessible just below the video: play/pause, volume, subtitles, view transcript, watch as picture-in-picture, or in full screen mode.
Reproductive Health Discussion
During the webinar, Hilary Rosselot, NFXF Executive Director, facilitated a one-hour Question and Answer session covering a wide-range of topics. The panelists shared resources and information while discussing the following topics:
- Puberty can be a confusing and challenging time. Identifying resources (books, pictures, videos, etc.) that may be helpful when discussing the feelings and emotions an individual may be experiencing as their body starts to transition into adulthood.
- Genetic screening and testing options for individuals who are considering expanding their family.
- FXPOI and other potential health implications and interventions women with the Fragile X premutation may consider discussing with their healthcare provider.
- Reproductive options for individuals who are seeking to grow their family.
- Factors to discuss if contraception is an option that you or your family may be considering. Note: We understand contraception is not for everyone. If you are not interested or do not believe in the use of contraception, feel free to fast-forward the webinar while this topic is being discussed.
Learn More About the Panelists
Heather Hipp, MD, an Assistant Professor at the Emory University School of Medicine and is board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility. She helped author the recent Fragile X Clinical and Research Consortium’s guidelines for FXPOI. Dr. Hipp works at the Emory Reproductive Center, focusing on infertility. She maintains a special clinical interest in women with POI, working to care for their overall health and reproductive needs.
Victoria Wilkins, MD, is a pediatric hospitalist who specializes in provider-family communication, experience of care, and care for children with complex healthcare conditions. She has a son with Fragile X syndrome and developed a Fragile X practice and research portfolio. She trains and coaches physicians, nurses, and other healthcare providers in engaging in difficult conversations, conflict resolution, disclosure and resolution of adverse events, and shared decision-making. She is the medical director of experience of care at Primary Children’s Hospital in Salt Lake City, Utah.
Additional Resources
We are excited to share updated information on our website that was referenced during the webinar. We have included the link to the resources and information below.
about
Missy Zolecki
Missy joined NFXF team in 2018 after being an active volunteer since 2010. Missy organized several fundraisers and educational workshops while serving in her volunteer role. Missy is the mother of three children. Her eldest son, Matt, lives with Fragile X syndrome. Prior to joining the NFXF team, Missy had worked as a nurse for more than 20 years. She enjoys traveling and spending time with family and friends.