Presented by Lauren Schmitt, PhD

Studies indicate over 80% of individuals with Fragile X syndrome demonstrate behavioral inflexibility. Behavioral inflexibility is likened to being stuck — a state in which the individual is unable to move on from a current behavior or thought. In FXS, individuals often become stuck in a repetitive loop of behavior, often impeding daily functioning, creating barriers to learning and social interactions, and ultimately worsening long-term outcomes.

In this presentation:

  • Feedback from focus groups with family members, caregivers, and self-advocates regarding behavioral inflexibility in FXS
  • Tips and tricks to both help manage behavioral inflexibility

Runtime: 47:34

Additional resources and controls for this video are accessible just below the video: Play/pause, volume, subtitles, view transcript, watch as picture-in-picture, or in fullscreen mode.

About the Speaker

Lauren Schmitt, PhD

Cincinnati Children’s Hospital Medical Center
Assistant Professor

Dr. Lauren Schmitt is a licensed clinical psychologist with extensive training in cognitive functioning in individuals with neurodevelopmental disorders. Since joining the Fragile X Research and Treatment Center at Cincinnati Children’s Hospital Medical Center over four years ago, she has had critical involvement in the current and past federally-funded U54 FXS Center, focused on identifying clinical correlates of neurophysiological biomarkers and characterizing potential subgroups of drug responders. In addition, her K23 Patient-Oriented Mentored Career Development Award focuses on identifying translational biomarkers of higher-level functioning, including speech production and cognitive flexibility, that can be used across mice and men.

Additional Resources

Behavior & Fragile X Syndrome

When discussing Fragile X syndrome and behavior, it is important to note that — like every person — the focus should be on the individual. Many behaviors are positive, and it is those behaviors you will see most often in addition to challenging behaviors. Behavior problems serve a purpose (or a function) and are often a form of communication. Addressing behavioral challenges in an individual with FXS should start with a comprehensive evaluation. A proactive approach with appropriate support and accommodations will likely foster positive outcomes and set up the individual with FXS to succeed in their home, school, or community.