Hilary Rosselot, NFXF executive director and research facilitation lead, gives advice and guidance to participating in research studies and clinical trials. Research cannot advance without participation — that is the bottom line. But, we realize it can be an unnerving unknown and a big commitment. Hilary will help you understand what to ask, how to navigate it, and more. She also introduces MyFXResearch portal, our tool to help you find studies and trials you can participate in.
If you are a researcher who would like your study listed or have other questions, please email firstname.lastname@example.org.
Hilary is also joined by two Fragile X moms who have participated in several studies and trials and share their perspectives and advice.