NFXF Webinar: Participating in Research Studies and Trials

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NFXF Webinar: Participating in Research Studies and Trials

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Hilary Rosselot, the NFXF Director of Research Facilitation, gives advice and guidance to participating in research studies and clinical trials. Research cannot advance without participation – that is the bottom line. But, we realize it can be an unnerving unknown and a big commitment. Hilary will help you understand what to ask, how to navigate it, etc. She also introduces the new MyFXResearch portal to help you find studies and trials you can participate it.

If you are a researcher who would like your study listed or have other questions, please email research@fragilex.org.

About the speaker. Hilary joined the NFXF team in 2019. Prior to joining the NFXF team, she worked at the Cincinnati Fragile X Research and Treatment Center for over 5 years. She has experience as a Clinical Research Coordinator across many types of clinical trials and served as the Clinical Research Manager for the Cincinnati program. She earned a BA in Psychology, an MBA and is a SOCRA Certified Clinical Research Professional. She enjoys time with family and friends, a great book, a strong cup of coffee and, of course, a good laugh!

Hilary is also joined by two Fragile X moms, who have participated in several studies and trials, to give their perspective and advice.

Pro tip: if you have an Amazon Fire TV, you can watch the webinar on the big screen with your NFXF Fire TV App. It is free! Click here to install it.

By | 2019-08-02T17:44:51+00:00 Aug 2, 2019|Research, Webinar|Comments Off on NFXF Webinar: Participating in Research Studies and Trials