Hilary Rosselot, NFXF executive director and research facilitation lead, gives advice and guidance to participating in research studies and clinical trials. Research cannot advance without participation — that is the bottom line. But, we realize it can be an unnerving unknown and a big commitment. Hilary will help you understand what to ask, how to navigate it, and more. She also introduces MyFXResearch portal, our tool to help you find studies and trials you can participate in.

If you are a researcher who would like your study listed or have other questions, please email

Hilary is also joined by two Fragile X moms who have participated in several studies and trials and share their perspectives and advice.

Author Hilary Rosselot

Hilary Rosselot
Hilary joined the NFXF team in 2019. Prior to joining the NFXF team, she worked at the Cincinnati Fragile X Research and Treatment Center for over five years. She has experience as a clinical research coordinator across many types of clinical trials and served as the clinical research manager for the Cincinnati program. She earned a bachelor’s degree in psychology, a master’s, and is a SOCRA certified clinical research professional (CCRP). She enjoys time with family and friends, a great book, a strong cup of coffee and, of course, a good laugh!