Dr. Elizabeth Berry-Kravis joins us to discuss the value of the FORWARD database for understanding problems that face adults living with Fragile X syndrome. We review enrollment of adults in the database, describe the age ranges of those enrolled, and give a snapshot from data we have in FORWARD so far of what adults are doing in the community and their living situation. Finally, we talk about how families of adults can contribute to FORWARD and our understanding of adults with FXS by doing a research-only remote visit with a FORWARD clinic to increase the data pool for adults with FXS in FORWARD.
The webinar was recorded live on Monday, December 7, 2020.
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