Words of Advice for Newly Diagnosed Parents The following is a summary of ideas, suggestions, and encouragements from parents and other family members. Some are from surveys and others were posted on Facebook. Thank [...]
When parents first learn about Fragile X, their primary focus is on the meaning of the diagnosis for their child with the syndrome. Once the dust settles though, they begin to think about the genetic implications for other family members, and in particular, for typically developing siblings who may or may not carry a Fragile X mutation.
