Adults with Fragile X syndrome Archives

Study: Transitioning to Adulthood with Fragile X syndrome

University of Kansas’ LifeSpan Institute is conducting research to learn about the transition to adulthood for individuals with Fragile X syndrome, as well as the experiences of parents of these young adults.

Exploring Parents’ Concerns Regarding Long-Term Support and Living Arrangements for Their Children with Fragile X Syndrome

By Hilary Rosselot|2023-05-15T12:51:14-04:00Oct 25, 2022|Blog, Research, Research Results|

Given the limited data regarding future planning specific to individuals with Fragile X Syndrome (FXS) and the growing population of this community, this study sought to explore the concerns and challenges caregivers of individuals affected by FXS encounter when considering long-term support plans.