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The NFXF Blog

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Exciting Media Attention About Fragile X Clinical Trials

By |Sep 21, 2012|

The NFXF is pleased to see the media attention surrounding the latest news resulting from clinical trials for Fragile X syndrome treatments. Two members of the NFXF’s Scientific and Clinical Advisory Committee, Dr. Randi Hagerman, the NFXF’s co-founder, and Dr. Elizabeth Berry-Kravis, also a member of the NFXF’s Board of Directors, have been receiving prominent mention. The NFXF has been pleased to be able to assist its corporate partner, Seaside Therapeutics, with recruitment for this trial and others.

Positive Exposures of Fragile X

By |Sep 19, 2012|

Professional photographer Rick Guidotti, of Positive Exposures, shared his beautiful photos of the attendees at the Conference. All rights belong to the National Fragile X Foundation. Feel free to download for personal use. Please contact [...]

Congratulations to the NFXF Awards Recipients

By |Sep 19, 2012|

Congratulations to the 2012 National Fragile X Foundation Awards Recipients! LINKS Leader Award for significant contributions to the awareness of Fragile X (Until 2012 called the Education & Awareness Award)   Diane Southard Diane Southard [...]

Study on Transition from Adolescence to Adulthood

By |Sep 7, 2012|

The University of South Carolina recruiting participants for an online study to help identify policies and services needing to be more responsive to your needs and experiences. They are studying the health and participation in various life activities (school, work, family and community life).