The NFXF Blog
GA: Date Night
Greater Atlanta Fragile X Date Night Date: March 13, 2015 Time: 08:00 PM Location: Top Golf Entertainment10900 Westside Parkway Alpharetta, GA 30009 Hosts: Greater Atlanta Fragile X Cost: Please note this social event is not [...]
Boston Children’s: Interested in Fragile X Sensory Processing Research?
This research study is looking at the relationship between sensory processing skills (response to sensory experiences) and the development of daily life skills (adaptive skills).
UNC-Stanford Project on Brain Development in Fragile X Syndrome Receives $5M Grant Award
Carolina Institute for Developmental Disabilities (CIDD) at the University of North Carolina at Chapel Hill and the Center for Interdisciplinary Brain Sciences Research (CIBSR) at Stanford University The Carolina Institute for Developmental Disabilities (CIDD) [...]
PA: Educational Conference
Navigating Transition to Adulthood for Fragile X Families Date: February 28, 2015 Time: 08:30 AM - 01:30 AM Location: Elwyn, Inc.111 Elwyn Road Elwyn, PA 19063 Elwyn Conference Center (third floor) Hosts: Fragile X Southeast [...]
Katie Couric to feature Fragile X on Yahoo News!
Katie Couric and her news team contacted us about featuring Fragile X on Yahoo News with Katie Couric. We’re excited to announce that they will be airing the piece soon! The news piece features interviews with NFXF Co-Founder Dr. Randi Hagerman, NFXF Board member Brain Silver and his wife Shari...
We’re Going Virtual: Update your Address Books!
The National Fragile X Foundation is closing the doors to our brick and mortar office, and our new mailing address will be located in Washington, DC. So please, update your address books! The biggest reason [...]
Fragile X Syndrome and Autism Spectrum Disorder: Similarities and Differences
It is important to note that it is more common for a child to be diagnosed with ASD and then to receive an additional diagnosis of FXS.
ABLE ACT Passes Senate
WASHINGTON, D.C. – Culminating a nearly eight year effort spanning four sessions of Congress the ABLE Act passed the Senate late Tuesday night with a vote of 76-16. The bill overwhelmingly earlier this [...]
ABLE Passes House
Eight Years of Hard Work by Advocates, One Step Closer to Reality Today the U.S. House of Representatives passed the Achieving A Better Life Experience Act. NFXF advocates have been urging their members of Congress to [...]
UMich: Study Opportunity for FXS Dads
the University of Michigan Researchers at the University of Michigan are looking for fathers of children with Fragile X syndrome to participate in a survey about their parenting experiences. Previous research has focused on [...]
Summer Student Fellowship: 2014 Summaries
The future of Fragile X research depends on inspiring and encouraging new generations of researchers to push Fragile X forward. That’s why we offer the annual Summer Student Fellowship, which assists young researchers in their [...]
“Happy Birthday” Meltdowns and Other Behavioral Conundrums
“Why does my child cry when people sing ‘Happy Birthday’ to her?” Many years ago when I first heard this from a parent of a girl with FXS, I thought it was rather strange and perhaps something unique to this child’s behavioral repertoire.