Dear Fragile X Community,

Sharing my family’s Fragile X story with you through the NFXF Annual Appeal was truly an honor. If you haven’t already, I hope you’ll take a moment to read through it and reflect on how the NFXF has touched your life. Each of us has our own version of this Fragile X journey, whether directly or indirectly, but it is all of these unique experiences that have built our community and drive the NFXF forward.

The next two years hold an amazing amount of promise. As NFXF Board President, I will harness the experiences, passion, and energy of our FX families to help accomplish the Foundation’s mission to support our community, increase awareness, and facilitate research. Our families lead the way and have always been our greatest strength.

For this reason, I’m asking you to share your thoughts and ideas with me at and connect with me on Facebook.

As we prepare to welcome 2017, I am filled with hope and excitement for what lies ahead. We have an incredible amount of opportunities to get involved and make a difference. In March, the Foundation will host our 17th annual NFXF Advocacy Day (NFXFAD) in Washington, DC. At NFXFAD, we foster relations with our Members of Congress to secure federal funding for Fragile X research and programs which will improve services and opportunities. In July, we begin our nationwide campaign for Fragile X Awareness Month. In late 2017, the NFXF will be hosting a Gala to continue our fundraising and awareness efforts. Throughout the year, our Community Support Network’s local chapters continue to hold events bringing friends and families together. These events are all possible because of the support you provide through campaigns like the Annual Appeal.

I wish you all a happy holiday season and look forward to making 2017 a year of connections and progress. Together, We’re Stronger and I truly appreciate the opportunity to help lead us forward!




Brian Silver
NFXF Board President