NFXF-funded Drug Research Shows Promise in Behavior Improvement

By |2013-04-23T11:18:28-04:00Apr 23, 2013|Keeping You Informed|

After three months of treatment with minocycline, children with Fragile X syndrome had greater improvements in general behavior, anxiety and mood-related behaviors, when compared with children with Fragile X syndrome who received placebo rather than the medication. The study was led by Mary Jacena Leigh, associate clinical professor of behavioral and developmental pediatrics with the Fragile X Treatment and Research Center at the MIND Institute.

Exciting Media Attention About Fragile X Clinical Trials

By |2012-09-21T10:40:33-04:00Sep 21, 2012|Keeping You Informed, News Reports and Commentaries|

The NFXF is pleased to see the media attention surrounding the latest news resulting from clinical trials for Fragile X syndrome treatments. Two members of the NFXF’s Scientific and Clinical Advisory Committee, Dr. Randi Hagerman, the NFXF’s co-founder, and Dr. Elizabeth Berry-Kravis, also a member of the NFXF’s Board of Directors, have been receiving prominent mention. The NFXF has been pleased to be able to assist its corporate partner, Seaside Therapeutics, with recruitment for this trial and others.

Executive Director Robert Miller Talks About the Conference

By |2012-07-20T18:47:41-04:00Jul 20, 2012|2012, Keeping You Informed|

Hello everyone. I know that many of you are preparing for your trip to the 13th International Fragile X Conference in Miami. This is my 7th conference as executive director but I am as excited now as I was for that first one back in 2000. (Los Angeles) I also know that many of you will not be able to join us this year. For both groups, I want reassure you that we will do our best to see that much of the conference content is made available in the months following the conference. While that doesn’t replace the incredible value of the connections that are made when you can attend in person, it is still our goal that everyone has access to the latest information.

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