A New Year. Here We Come!

By Jayne Dixon Weber

Ups and downs, challenges and rewards – life gives us all of these.

This time of year can be challenging for all of us.

So, as parents and caregivers, it is important to take care of yourself.

From the 2022 NFXF International conference – Here is a talk by Dr. Randi Hagerman on premutation carriers.

Randi discusses all of the Fragile X-associated conditions and disorders and strategies for some of the characteristics sometimes seen. She offers suggestions such as doing exercise, treating anxiety and depression if you have it, cutting back on alcohol, stopping smoking, getting good sleep or treating sleep apnea, cognitive stimulation, and to try for IV anesthesia if you can.

There is a lot of great information to digest in this talk. I hope you will find it useful as you get ready to start this new year.

Premutation Concerns

Dr. Randi Hagerman

As always, please let us know if you have questions.

We don’t have all the answers, but we will never stop providing you with knowledge, resources, and tools to empower you along the Fragile X journey.

Did you find this content helpful?  The NFXF produces actionable, relevant content all year long.

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Jayne Dixon Weber, director of community services, NFXF

Jayne Dixon Weber
Jayne is the NFXF director of community education and has been a member of the NFXF team since 2007. She has two adult children, a son with Fragile X syndrome and a daughter. Jayne is the author of Transitioning ‘Special’ Children into Elementary School, co-author of Fragile X Fred, and editor of Children with Fragile X Syndrome: A Parents’ Guide. Jayne likes to read, enjoys photography, and goes for a walk every day.