We kicked off the 19th NFXF International Fragile X Conference 19th NFXF International Fragile X Conference with an incredible Keynote address.

It was so inspirational; we couldn’t keep it to ourselves!

Listen as Carly Dolan, Jill Dolan, David Tillman, and Tamaro Hudson share their Xtraordinary stories. Get ready to be inspired, empowered, and uplifted by our panelists’ resilience, courage, and unwavering determination.

Thank you to Carly, Jill, David, and Tamaro for sharing such heartwarming, vulnerable messages of hope. We are so fortunate to be surrounding by people who are embracing the Xtraordinary every day.

Want to meet more Xtraordinary Individuals? Check out our Xtraordinary Individuals webpage and submit your own story.

And if you are interested in seeing more Conference content, it’s not too late to register for virtual access. Most of the Conference sessions are recorded and available on the Conference app, Whova, through October 2024.

learn more

Panel Discussion — Gene Therapy

As gene therapies continue to enter rare disease and Fragile X spaces, we know that our community has become increasingly curious about what this means for Fragile X. At the 19th NFXF International Fragile X Conference, experts shared their thoughts on gene therapies and their future in the Fragile X world.

2024 Industry Updates — Presentation

Three of our industry partners working on treatments for Fragile X syndrome (FXS) presented updates on their research at the 19th NFXF International Fragile X Conference on July 27, 2024.  Presenters included representatives from Tetra Therapeutics, Harmony Biosciences, and Spinogenix.