By Linda Sorensen
It is said that to truly be a great non-profit board member requires having good character, a strong commitment to the cause, the gift of time, and a willingness to use personal and professional resources to advance the organization’s mission.
The National Fragile X Foundation has been incredibly fortunate to have Jay Souder serving as our own great board member for the past eight years. His tenure as board member, development chair, and board president have made a lasting, positive impact on our organization. His leadership legacy has informed every aspect of our growth, maturity, and service to the Fragile X community. Jay initially joined the board inspired by his wife Anne’s volunteer activities as a community contact and motivated by his son Alec’s determination to live his best life with Fragile X.
In addition to their personal financial support of our work, Jay, Anne, and Alec have raised over $100,000 in the past three years with their annual FORE! Fragile X golf event in Scottsdale, Arizona. Incredibly, they retained the financial support and pledges from almost all their donors and sponsors after having to cancel in 2020, a true testament to their dedication and to the relationships they have built with their network of friends and colleagues.
With his board term now concluded, Jay has graciously stepped into our first-ever NFXF Ambassador position, helping us further build on the many relationships he established during his tenure. We are so fortunate to have his continued commitment to share the value of our work to our supporters.
Before he launches into this new role, we want to say thank you. Thank you for your service to the Fragile X community. Thank you for your passion, your commitment, and your positive impact on the NFXF and our board of directors.
But before he launches into this new role, we want to say thank you. Thank you for your service to the Fragile X community. Thank you for your passion, your commitment, and your positive impact on the NFXF and our board of directors. Your vision for our future as the premier patient advocacy organization for Fragile X will continue to serve Fragile X families well — both today and tomorrow — for which we are all immensely grateful.